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Grant Abstract
A Sociotechnical Approach to Improving Security and Privacy in the Genomic Data Ecosystem
PROJECT SUMMARY/ABSTRACT The dream of open science for genomics is hindered by concerns about genomic data re-identification and the resulting restrictive data access protocols. The long-term goal is…- Adopted
- Adoption
- Algorithms
- Attitude
- Belief
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Publication
Globalization and biotechnology policy: The challenges created by gene patents and cloning technologies
SpringerDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Response to "Clone alone" by Carson Strong and "Are there limits to the use of reproductive cloning" by Timothy Murphy: Equal access to cloning?
Cambridge Quarterly of Healthcare EthicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Engineering our grace: An old idea and new genetic technologies
Saint Louis University PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
The development and dispersion of technologies for diagnosis of genetic diseases: A European response
Duncker & HumblotDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Human gene therapy research: Technological temptations & social control
Genetic ResourceDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Fetal positions: The ethical opposition to cloning technologies appears to be softening
NatureDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Mind the gaps: Intersex and (re-productive) spaces in disability studies and bioethics
Journal of Bioethical InquiryDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
Intellectual Property and Access to Noninvasive Prenatal Genetic Testing
The purpose of this study is to provide empirical data on effects of intellectual property (IP) and commercialization on clinical translation of noninvasive prenatal genetic testing (NIPT) and…- Aneuploidy
- base
- Base Sequence
- Bioethics
- Bioethics Consultants
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Publication
Ethics and law of intellectual property: Current problems in politics, science, and technology
AshgateDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…