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News
Ethical Issues in Pediatric Gene Therapy Clinical Trials
The Working Group on Pediatric Gene Therapy and Medical Ethics (PGTME) was created in 2019 to study ethical issues surrounding research in genetic interventions for pediatric populations. The group…- pediatric gene therapy
- Pediatric Research
- Informed Consent
- Research Ethics
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Publication
The troubled dream of genetic medicine: Ethnicity and innovation in Tay-Sachs, cystic fibrosis, and sickle cell disease
Johns Hopkins University PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
News
ELSI-related Presentations at ASHG 2021
ASHG Annual Meeting • Oct 18-22, 2021 Please email [email protected] with any questions or to add any missing talks All times are in Eastern Time Awards Congratulations to all the 2021…- ELSI
- ASHG
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Publication
Attitudes among parents of persons with autism spectrum disorder towards information about genetic risk and future health
European Journal of Human Genetics -
Publication
Twenty questions in genetic medicine--an assessment of World Wide Web databases for genetics information at the point of care
Genetics in MedicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
The dilemma of intellectual property rights for pharmaceuticals: The tension between ensuring access of the poor to medicines and committing to international agreements
Developing World BioethicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Job Posting
Open-Rank Academic Faculty, Bioethics
The Department of Social Sciences and Health Policy at Wake Forest University School of Medicine and the Bioethics Graduate Program at Wake Forest University invite applications for a tenure-track…- Bioethics
- Empirical ethics
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Video
Widening the Lens: Using Arts in ELSI Research
Using the arts in ELSI research can offer new insights and opportunities to engage with diverse participants in genomic research. ELSI scholars have creatively incorporated…- arts-based methods
- ELSI research
- ART
- Community Engagement
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News
ELSI in Review • January 2025
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our January 2025 set explores public perceptions of genetic…- gene therapy
- CRISPR-Cas9
- Polygenic risk scores
- Biobanking
- Artificial intelligence
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Publication
All of Us participant perspectives on the return of value in research
Genetics in Medicine