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Video
ELSIconversations ELSICon2022: The All of Us Research Program: What Duties do Researchers Have When Conducting Precision Medicine Research?
Co-Moderators: Johanna Crane, PhD & Mildred Cho, PhD Presenters: Katherine Blizinsky, PhD; Subhashini Chandrasekharan, PhD; Sonya Jooma, MA & Rachel Bailey, ABD Links to…- precision medicine research
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Additional Resource
Idaho 2014 State Bills (Idaho 2014 SB 1273)
If a firefighter is diagnosed with breast cancer within 5 years of employment if diagnosed before the age of 40 and if the cancer was not revealed during an initial employment medical screening…- state bill
- bill
- bill status died
- Idaho
- genetic predisposition
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Additional Resource
Hawaii 2011 State Bills (Hawaii 2011 HB 1451)
This bill adds a new chapter to the Hawaii statutes on the privacy of health care information. The bill provides for the protection of "protected health information," including genetic…- state bill
- bill
- Hawaii
- protected health information
- genetic information
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Video
ELSIcon2022 Paper: Race-Based Genetic Testing: Learning from Black Americans to Inform Policy and Practice
ELSIcon2022 • Paper • May 27, 2022 James DuBois, Ana Iltis Geographical ancestry has been associated with increased risk of various genetic conditions. Race and ethnicity often have been used as…- Uptake of genetic testing
- Genetic testing and screening
- Paper
- Pre-Recorded
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Video
ELSIcon2022 Flash: Inequality and Health: Sickle Cell Disease and Food Insecurity during the COVID-19 Pandemic
ELSIcon2022 • Flash • May 27, 2022 Faeben Wossenseged, Ashley Buscetta, Nicole Farmer, Vence Bonham The COVID-19 pandemic has exacerbated social inequalities including food insecurity, limiting…- Lived experience of genetic conditions
- health disparities
- Flash
- Pre-Recorded
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Additional Resource
Workshop Proceedings, Conflict of Interest and Medical Innovation: Ensuring Integrity While Facilitating Innovation in Medical Research, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2014)
This National Academies Press publication summarizes the proceedings of a workshop that explored how conflict of interest policies interact with medical innovation. The workshop was convened by the…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Publication
Genomic medicine implementation protocols in the PhenX Toolkit: Tools for standardized data collection
Genetics in Medicine -
Publication
Polygenic risk scores in the clinic: New perspectives needed on familiar ethical issues
Genome Medicine -
Publication
Confronting real time ethical, legal, and social issues in the eMERGE (Electronic Medical Records and Genomics) Consortium
Genetics in Medicine