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Publication
Social and scientific motivations to move beyond groups in allele frequencies: The TOPMed experience
American Journal of Human Genetics -
Research Tool
Trust in Medical Researchers Scale
Mainous and colleagues report the development and validation of the 12-item Trust in Medical Resesearchers Scale. This scale is designed to be self-administered. Several scale items assess concerns… -
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Video
ELSIconversations ELSICon2022: Stakeholder Perspectives on Data Sharing and Privacy
Co-Moderators: Vasiliki N. Rahimzadeh, PhD; Sara Ackerman, PhD, MPH; & Sandra Soo-Jin Lee, PhD Presenters: Karen Meagher, PhD, Alyx Vogle, MS CGC, & LaKisha David,… -
Publication
How reproductive and regenerative medicine meet in a Chinese fertility clinic Interviews with women about the donation of embryos to stem cell research
Journal of Medical EthicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Comparing the frequency of variants of uncertain significance (VUS) between ancestry groups in a paediatric epilepsy cohort
Journal of Medical Genetics -
Publication
Controlling my genome with my smartphone: First clinical experiences of the PROMISE system
Clinical Research in Cardiology -
Additional Resource
Accessibility, Inclusion, and Action in Medical Education
This report by the Association of American Medical Colleges (AAMC) and the University of California, San Francisco, School of Medicine (UCSF) shares the day-to-day experiences of learners and…- accessibility
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News
ELSIhub Collections | Ethical, Legal, and Social Implications (ELSI) at the Intersection of Genomics and Infectious Disease
Click here for all ELSIhub Collections Collection Editors Debra JH Mathews, PhD, MA, Center for Bridging Infectious Disease, Genomics, and Society (BRIDGES), Assistant Director…- genomics and infectious disease
- Covid-19
- ethical conduct of phylogenetic studies
- host genome testing
- data justice