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Publication
Use of real-world evidence in US payer coverage decision-making for next-generation sequencing-based tests: challenges, opportunities, and potential solutions
Value HealthClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): U01 HG009599, R01 CA221870 -
Publication
Insights from a temporal assessment of increases in US private payer poverage of tumor sequencing from 2015 to 2019
Value HealthClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): U01 HG009599, R01 CA221870 -
Publication
The FDA and genomic tests--getting regulation right
N Engl J MedClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): U01 HG006507, U01 HG007307 -
Additional Resource
Implementing GeNomics in Practice (IGNITE I & IGNITE II)
The Implementing GeNomics In PracTicE (IGNITE) Pragmatic Clinical Trials Network, is a network of research sites that support the implementation of genomics in healthcare by conducting pragmatic…- electronic medical record
- clinical decision support
- genomic information
- Patient Care
- sustainability
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Publication
Recommendations of the Gene Therapy Advisory Committee / Committee on Safety of Medicines working party on retroviruses May 2005
Human Gene TherapyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
Assessing the utility of genomic counseling for common complex diseases
This application seeks to better understand the needs of patients undergoing genomic testing with respect to the understanding of an adaptation to genomic information through genomic counseling.…- Academic Medical Centers
- Age
- Age related macular degeneration
- base
- behavior change
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News
Creating and Sharing Animated Videos to Communicate ELSI Concepts: An Interview with Mildred Cho
In August, Mildred Cho, PhD, a long-time member of the ELSI scholarly community, and Professor in the Department of Pediatrics, Division of Medical Genetics and in the Department of Medicine at…- research tools
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Publication
Life as an intelligence test: Intelligence, education, and behavioral genetics
Culture, Medicine, and Psychiatry -
Publication
Informed consent and subject motivation to participate in a large, population-based genomics study: The Marshfield Clinic Personalized Medicine Research Project
Community GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Comparative ethical evaluation of epigenome editing and genome editing in medicine: First steps and future directions
Journal of Medical Ethics