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Publication
The African Society of Human Genetics successfully launches global data science workshops
Trends in Genetics -
Video
ELSIcon2022 Paper: Race-Based Genetic Testing: Learning from Black Americans to Inform Policy and Practice
ELSIcon2022 • Paper • May 27, 2022 James DuBois, Ana Iltis Geographical ancestry has been associated with increased risk of various genetic conditions. Race and ethnicity often have been used as…- Uptake of genetic testing
- Genetic testing and screening
- Paper
- Pre-Recorded
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Publication
NIH recombinant DNA Advisory Committee continues to ponder adverse event associated with AAV gene therapy trial
Molecular TherapyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
How patients deal with an ambiguous medical test: Decision-making after genetic testing
Patient Education and Counseling -
Additional Funding Resource
Center for Scientific Review
The Center for Scientific Review (CSR) is the gateway for NIH grant applications and their review for scientific merit. This site provides detailed information on all aspects of the review process. -
News
Ethical, Legal, and Social Implications in All of Us
(The following announcement is available online at All of Us, News and Events) Today the All of Us Research Program released the white paper “Ethical, Legal, and Social Implications (…- All of Us Research Program
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Video
April 2025 EFF: Biogenome Science at an International Scale: Navigating ELSI Challenges
The Earth BioGenome Project (EBP) aims to collect whole genome sequences from all eukaryotic species on Earth before 2028 and produce an open DNA database. The African BioGenome Project (ABP) is a…- earth biogenome
- International Aspects
- ELSI
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Publication
Informed Consent and Protection of Personal Data in Genetic Research on COVID-19
Healthcare -
Publication
Reanalysis of genomic data: An overview of the mechanisms and complexities of clinical adoption
Genetics in Medicine