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131 - 140 of 7195 Topics
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Publication
Sharing data to build a medical information commons: From Bermuda to the Global Alliance
Annu Rev Genomics Hum GenetDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Publication
Sharing of genomic data: Exploring the privacy implications of the changing status of genomic data
Journal of Law and Medicine -
Video
ELSIcon2024: Differences between private, government, and consortium data stewards and their impact on genetic research with diverse ancestra
ELSIcon2024 • Paper • June 10, 2024 Authors: Speaker: Kayte Spector-Bagdady, JD, MBe (she/her/hers) – University of Michigan Genetic researchers must have access to databases…- ELSIcon2024
- 6th ELSI Congress
- Biobanking and genomic databases
- equity and justice in genetics
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Publication
Public and biobank participant attitudes toward genetic research participation and data sharing
Public Health Genomics -
Publication
Public attitudes towards genomic data sharing: Results from a provincial online survey in Canada
BMC Medical Ethics -
Publication
Payer reimbursement practices and incentives for improving interpretation of germline genetic testing
Journal of Law and the BiosciencesDeverka and colleagues propose policies for private payers and Medicare that would channel variant and interpretation data from laboratories into public knowledge bases. -
Publication
Apropos data sharing: Abandon the distrust and embrace the opportunity
DNA and Cell Biology -
News
ELSI in Review • June 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our June 2023 set explores transparency in secondary use…