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Publication
Ethical issues in genetics and infectious diseases research: An interdisciplinary expert review
Ethics, Medicine and Public Health -
Publication
Harm, hype and evidence: ELSI research and policy guidance
Genome MedicineDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Video
April 2025 EFF: Biogenome Science at an International Scale: Navigating ELSI Challenges
The Earth BioGenome Project (EBP) aims to collect whole genome sequences from all eukaryotic species on Earth before 2028 and produce an open DNA database. The African BioGenome Project (ABP) is a…- earth biogenome
- International Aspects
- ELSI
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News
May 2025 ELSI Journal Club Resources
Session’s Featured Paper: Parents’ perceptions of the utility of genetic testing in the NICU Date and time: Friday, May 30, 2025 | 12pm ET US / 9am PT US Featured Author: Katharine Press… -
Grant Abstract
Problem-Based Learning Unit for Teaching ELSI/Genetics
This project will advance the level of genetic literacy in science teachers through the development and dissemination of a curriculum unit for teaching ELSI/genetics. Professional development…- Clinical Research
- curriculum
- education evaluation /planning
- educational resource design /development
- Genetics
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Publication
Genetic contextualism and the value of a structured process
Am J BioethUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Grant Abstract
An ELSI-Integrated Evaluation of the Family-Level Utility of Pediatric Genomic Sequencing
PROJECT NARRATIVE The goal of the proposed research is to investigate how clinical genomic sequencing impacts families of pediatric patients. This research will develop an empirically informed…- Affect
- American
- Area
- Award
- base
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Grant Abstract
Utah Center of Excellence in ELSI Research: UCEER
This application is to fund the University of Utah Center of Excellence in ELSI Research (UCEER). The University of Utah has a strong tradition in human genetics and ELSI research and this proposal…- Advisory Committees
- Applications Grants
- biobank
- Career Mobility
- carrier testing
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News
New 5th ELSI Congress Special Issue of AJOB Empirical Bioethics
We are pleased to announce the publication of a special issue of the AJOB Empirical Bioethics. This special issue includes four primary research papers, which were initially presented at the 5th… -
Grant Abstract
UCEER: Utah Center for Excellence in ELSI Research P20
The University of Utah Center for Excellence in ELSI Research (UCEER) will conduct strategic planning for ELSI research, training and mentoring, and conduct two pilot projects. The focus of the UCEER…- Aneuploidy
- Child
- Childhood
- Communication
- Communities