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Publication
Access and management: Indigenous perspectives on genomic data sharing
Ethnicity & Disease -
Grant Abstract
Utility of Genomic Sequencing in Community Care Contexts
PROJECT NARRATIVE Families with children who have identified deficits in speech and/or sensory or musculoskeletal impairments without a known cause may be referred for genetic testing to find out…- Address
- Advisory Committees
- Area
- base
- Behavior
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Grant Abstract
Human Genome Project: Community Conversations
This 3-Year Project (Amended Application) seeks support for an innovative inter-regional public education model, in New York and Arizona, aimed at developing and using public libraries as centers for…- biotechnology
- Clinical Research
- education evaluation /planning
- Ethics
- Genetic Screening
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Grant Abstract
Community Engagement Core
NARRATIVE / PUBLIC HEALTH RELEVANCE STATEMENT The Community Engagement Core (CEC) will provide the oversight needed to ensure the U54 Pacific Center for Genome Research (PCGR)’s consideration of…- medically underserved
- Arterial Disorder
- Atherosclerosis Risk in Communities
- Community Health Education
- Framingham Heart Study
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Publication
Culturally responsive strategies and practical considerations for live tissue studies in Māori participant cohorts
Front Res Metr Anal -
Publication
Overvaluing individual consent ignores risks to tribal participants
Nature Reviews Genetics -
Publication
Genes, patents, and indigenous peoples: Biomedical research and Indigenous peoples' rights
Cultural Survival QuarterlyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
In the Media
Training the Next Generation of Indigenous Data Scientists
The New York Times |Sabrina Imbler- Indigenous Communities
- Data Scientist
- investigator training
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Video
March 2025 EFF: Enhancing Genetic Screening Access through Community Partnerships in the Cleveland African American Prostate Cancer Project
Genetic screening is crucial for identifying genetic risk factors for disease, but marginalized groups often have low participation due to lack of access, awareness, and mistrust of healthcare…- community building
- Prostate Cancer
- Community resource projects