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Publication
Integrating mRNA vaccines into the attitudes toward genomics and precision medicine scale: A validation study with a sample of 4939 adults in the USA
Journal of Clinical and Translational Science -
Video
ELSIcon2022 Paper: Mapping Diversity and Equity in Precision Medicine Research: Towards an Ethics of Inclusion
ELSIcon2022 • Paper • June 1, 2022 Sandra Soo-Jin Lee and Janet Shim on behalf of Ethics of Inclusion Study Team This paper draws on our study that takes a research ‘lifecourse’ perspective to…- Live
- Paper
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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Video
ELSIcon2022 Flash: Distributional Cost-Effectiveness Analysis to Incorporate Health Equity Concerns in the Assessment of the Value of Precision Medicine Technologies
ELSIcon2022 • Flash • May 31, 2022 Cheng Chen, Jeroen Jansen BACKGROUND: Distributional cost-effectiveness analysis (DCEA) has been recently proposed as an intuitive extension of conventional…- Live
- Flash
- tools
- Health Disparities
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Publication
Ethical considerations for precision psychiatry: A roadmap for research and clinical practice
European Neuropsychopharmacology -
Publication
The roots of (in)equity in precision medicine: Gaps in the discourse
Personalized Medicine -
Video
Engaging Participants as Partners: ELSI Considerations in Large-Scale Precision Medicine Research
To be relevant and impactful, it has become increasingly necessary for researchers to engage stakeholders outside the usual research communities, such as patients and community representatives. Yet,… -
Publication
Health equity innovation in precision medicine: Data stewardship and agency to expand representation in clinicogenomics
Health Research Policy and Systems -
Publication
A qualitative study of diversity in precision medicine research: The development and stakeholder assessment of a Diversity Decision Map
Journal of Clinical and Translational Science