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Publication
Increasing inclusivity in precision medicine research: Views of deaf and hard of hearing individuals
Genetics in Medicine -
Publication
Will precision medicine meet digital health? A systematic review of pharmacogenomics clinical decision support systems used in clinical practice
OMICS: A Journal of Integrative Biology -
Publication
The urgent need for health data justice in precision medicine
The American Journal of Bioethics -
Publication
Overcoming barriers to health equity in precision medicine research
The American Journal of Bioethics -
Video
ELSIcon2022 Paper: Investigating an Ethos of Duty in Precision Medicine Research Calls for Minority Participation
ELSIcon2022 • Paper • May 27, 2022 Rachel Bailey A rhetorical utility of identity may provide a novel method of inquiry for bioethics research. To increase diversity of Precision Medicine (PM…- Pre-Recorded
- Paper
- Motivation to participate in research
- Education and public reception of genetic science
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Video
ELSIcon2022 Paper: When Covering and Discovering Are at Odds: How the Logic of Health Insurance Undercuts the Promise of Precision Medicine for People with Hereditary Cancer Risks
ELSIcon2022 • Paper • June 1, 2022 Mark Schlesinger, Rachel Grob, Emily Mrig The past two decades have seen significant advancement in precision medicine approaches to preventing and treating…- Live
- Paper
- Access to genetic screening and therapies
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Publication
Tribal deliberations about precision medicine research: Addressing diversity and inequity in democratic deliberation design and evaluation
Journal of Empirical Research on Human Research Ethics -
Publication
A participant-centered approach to understanding risks and benefits of participation in research informed by the Kidney Precision Medicine Project
American Journal of Kidney Diseases -
Video
ELSIcon2022 Paper: Mandating Diversity in the Context of Inequity: Re-examining the Research-Care Divide in Precision Medicine Research
ELSIcon2022 • Paper • June 1, 2022 Nicole Foti, Emily Vasquez, Caitlin McMahon, Sandra Soo-Jin Lee, and Janet Shim on behalf of Ethics of Inclusion Study Team There is a diversity deficit in…- Live
- Paper
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks