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Grant Abstract
Academic Industry Relationships in Genetics
The purpose of the proposed investigation is to explore the phenomenon of Academic-Industry Relationships (AIRs) in the life-sciences, with an emphasis in the field of genetics. This study seeks to…- Biology
- biotechnology
- Clinical Research
- Focus Groups
- Genetics
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News
Meet the New CERA Advisory Board!
Please join us in extending a warm welcome to our new CERA Advisory Board: Daniel Chavez-Yenter, Ellen Clayton, Shoumita Dasgupta, Stacey Pereira, Alham Saadat, and Wendy Uhlmann! We are excited to… -
Publication
Patient-generated health data (PGHD): Understanding, requirements, challenges, and existing techniques for data security and privacy
Journal of Personalized Medicine -
Grant Abstract
Ethical Legal and Social Implications Issues in Comparative Effectiveness Research
Two major forces in clinical medicine on the horizon are expected to change the paradigm of clinical care. One is personalized genomic medicine (PGM), which seeks to harness knowledge about the…- Alternative Therapies
- clinical care
- Clinical Medicine
- clinical practice
- Communities
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Publication
Awareness and acceptable practices: IRB and researcher reflections on the Havasupai lawsuit
AJOB Prim Res -
Publication
Considering “respect for sovereignty” beyond the Belmont Report and the common rule: Ethical and legal implications for American Indian and Alaska native peoples
American Journal of Bioethics -
News
New Special Report of the Hastings Center Report
We are pleased to announce the publication of a new Hastings Center Report, special report, "Envisioning a More Just Genomics". The report, a collaboration between The Hastings… -
Grant Abstract
National Information Resource on Ethics and Human Genetics
This project will continue the activity of the National Information Resource on Ethics and Human Genetics at the Kennedy Institute of Ethics, Georgetown University. The research group will continue…- behavioral /social science research tag
- Catalogs
- Data Collection
- Ethics
- Genetic Screening
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Additional Resource
Consensus Study Report, The Future of the Public's Health in the 21st Century, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2003)
This National Academies Press publication documents the evidence-based findings, conclusions, and recommendations of a committee of experts on systems approaches to assuring the health of the U.S.…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Workshop Proceedings, Challenges and Opportunities in Using Residual Newborn Screening Samples for Translational Research, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2010)
This report summarizes the proceedings of a 2010 workshop hosted by the Institute of Medicine. This workshop explored issues related to the use of residual newborn screening specimens for…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding