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Additional Resource
Qualitative Data Sharing (QDS) Toolkit
The QDS project team at Washington University School of Medicine in St. Louis has developed the QDS Toolkit to support researchers in planning for and sharing qualitative data in an ethical manner.…- qualitative data
- data sharing
- 2023 NIH Data Management and Sharing Policy
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Publication
Bringing the human genome and the revolution in bioinformatics to the medical school classroom: A case report from Washington University School of Medicine
Academic MedicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
News
ELSI-related presentations at ASHG 2022
Please click link below to open entire schedule as a pdf file: Document ELSI-related talks at ASHG 2022.pdf (117.26 KB) Schedule Tuesday – Oct… -
Grant Abstract
Identifying strategies to reveal genetic results over the lifespan
PROJECT NARRATIVE If healthy babies are sequenced near birth, when should genetic information relevant to later stages of their lives be revealed? There are different possible strategies for when…- Decision making
- Specific qualifier value
- screening panel
- Genetic Diseases
- genetic screening
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News
ELSI in Review • June 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our June 2023 set explores transparency in secondary use… -
Collection
Genomics <em>of</em> Education <em>in</em> Education: ELSI Concerns about Genomic Prediction in Educational Settings
Polygenic scores (PGS) for educational traits and outcomes (e.g., math ability, reading ability, and educational attainment) are currently available to the public via direct-to-consumer genetic…- Polygenic scores
- precision education
- learning disabilities
- Pygmalion effect
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Publication
Ethical, legal, and social implications of genomics research: Implications for building a more racially diverse bioethics workforce
The American Journal of Bioethics -
Job Posting
Assistant Professor/Associate Professor, Bioethics and Humanities
The Center for Bioethics and Humanities at SUNY Upstate Medical University (Syracuse, NY) seeks to fill a tenure-track position in Bioethics and Humanities at the rank of Assistant or Associate…- Bioethics
- Health Humanities
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Video
Impact of SCOTUS's Dobbs Decision on Prenatal Genomics Research and Practice
The upcoming Supreme Court’s decision in Dobbs v. Jackson Women’s Health is likely to change the landscape of clinical practice in prenatal genomic medicine. With the prospect of overturning Roe v.…- federal policy
- Reproductive Health