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1351 - 1360 of 2161 Topics
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Publication
Experiences in molecular-based prenatal screening for Ashkenazi Jewish genetic diseases
Adv Genet -
Publication
Impact of HIPAA's minimum necessary standard on genomic data sharing
Genet MedClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): UO1HG008657, UO1HG006507, U01HG007307 -
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Video
ELSIcon2022 Paper: Examining Embeddedness: A Call for Principles and Best Practices for Integrating ELSI
ELSIcon2022 • Paper • May 27, 2022 Jenny Reardon, Stephanie M. Fullerton, and Sandra Soo-Jin Lee Increasingly, public and private funders have come to recognize the critical significance of…- Reflections on the ELSI field
- equity and justice in genetics
- Paper
- Pre-Recorded
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Video
ELSIcon2022 Paper: White racial framing and comfort with medical research: a critical analysis
ELSIcon2022 • Paper • May 27, 2022 Melissa Creary, Jodyn Platt, Sharon Kardia, Paige Nong Objectives: To analyze racial differences in comfort with medical research using an alternative to…- Pre-Recorded
- Paper
- Motivation to participate in research
- Public Health
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Video
ELSIcon2022 Paper: Mapping Diversity and Equity in Precision Medicine Research: Towards an Ethics of Inclusion
ELSIcon2022 • Paper • June 1, 2022 Sandra Soo-Jin Lee and Janet Shim on behalf of Ethics of Inclusion Study Team This paper draws on our study that takes a research ‘lifecourse’ perspective to…- Live
- Paper
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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Video
ELSIcon2022 Late-Breaking: South Africans’ opinions on human heritable genome editing: Promoting equal access as key to the future
ELSIcon2022 • Networking Session • Late-breaking Abstracts • June 1, 2022 Donrich Thaldar, Bonginkosi Shozi A deliberative public engagement study among South Africans on the topic of…- Live
- Networking Session
- Late-breaking Abstracts
- Emerging technologies - public opinion and policy
- equity and justice in genetics
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Video
White racial framing and comfort with medical research: a critical analysis
ELSIcon2022 • Pre-recorded Paper Paige Nong - University of Michigan Melissa Creary Jodyn Plat Sharon Kardia White racial framing and comfort with medical research: a critical analysis…- Public Health
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Publication
What do the British and Chinese governing visions on human genomic research tell us about biosovereignty?
Asian Biotechnology & Development Review -
Publication
Racial profiling of DNA samples: Will it affect scientific knowledge about genetic variation
Brill Academic Publishers