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ELSIcon2022 Paper: Toward an anthropology of rare disease
ELSIcon2022 • Paper • May 27, 2022 Meghan Halley, Colin Halverson, Marsha Michie Rare genetic diseases affect an estimated 330 million individuals worldwide. These patients often struggle to…- Lived experience of genetic conditions
- equity and justice in genetics
- Paper
- Pre-Recorded
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Grant Abstract
Pharmacogenomics and Minority Populations
The overall objective of the proposed research is to study the ethical, legal, and social implications of drug responsive genetic variations, especially where significant differences have been found…- behavioral /social science research tag
- Clinical Research
- drug screening /evaluation
- Ethics
- Ethnic group
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Publication
Genes, work and health
Annals Academy of Medicine SingaporeDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Voting: In your genes?
ScienceDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Toward timely and equitable advanced biomarker testing for patients with metastatic cancer in Canada
Current Oncology -
Grant Abstract
Center for Genomics and Healthcare Equality
Genomic research is rapidly expanding our knowledge about the genetic contributors to health and disease. A broad range of health benefits will flow from this research, including tests to predict…- Attention
- Benchmarking
- Clinical
- Communities
- Community Practice
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Publication
Biotechnology, genes, and justice
Georgetown University PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Genes sans frontieres
New ScientistDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Molded by our genes
Nature GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…