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Grant Abstract
Identifying strategies to reveal genetic results over the lifespan
PROJECT NARRATIVE If healthy babies are sequenced near birth, when should genetic information relevant to later stages of their lives be revealed? There are different possible strategies for when…- Decision making
- Specific qualifier value
- screening panel
- Genetic Diseases
- genetic screening
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Publication
Challenges in returning results in a genomic medicine implementation study: The Return of Actionable Variants Empirical (RAVE) study
npj Genomic Medicine -
Publication
From disparity to difference: How race-specific medicines may undermine policies to address inequalities in health care
Southern California Interdisciplinary Law JournalDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Ethical issues in clinical genetics: A report of a Joint Working Party of the College Committee on Ethical Issues in Medicine and the College Committee on Clinical Genetics
Journal of The Royal College of Physicians of LondonDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Ethical, legal, and social issues (ELSI) of responsible data sharing involving children in genomics: A systematic literature review of reasons
AJOB Empirical Bioethics -
Publication
Confronting the issues of therapeutic misconception enrollment decisions, and personal motives in genetic medicine-based clinical research studies for fatal disorders
Human Gene TherapyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Job Posting
Assistant Professor/Associate Professor, Bioethics and Humanities
The Center for Bioethics and Humanities at SUNY Upstate Medical University (Syracuse, NY) seeks to fill a tenure-track position in Bioethics and Humanities at the rank of Assistant or Associate…- Bioethics
- Health Humanities
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Publication
CRISPR/Cas9: Regulations and challenges for law enforcement to combat its dual-use
Forensic Science International Genetics -
Additional Resource
Ethics Committee Opinion, Disclosure of Sex When Incidentally Revealed as Part of Preimplantation Genetic Testing (PGT), American Society for Reproductive Medicine (ASRM)
This ASRM Ethics Committee opinion published in 2018 outlines key points to consider in the development of identification and disclosure of sex policies at clinics that perform PGT with a primary…- ethics committee opinion
- preimplantation genetic testing
- PGT
- sex policies
- American Society for Reproductive Medicine
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Video
ELSIcon2022 Paper: Awareness and Utilization of Genetic Testing among Hispanic/Latino Adults Living in the US: The Hispanic Community Health Study/Study of Latinos
ELSIcon2022 • Paper • May 27, 2022 Kurt D. Christensen, Mengran Zhang, Lauren Galbraith, Einat Granot-Hershkovitz, Sarah Nelson, Sara Gonzalez, Maria Argos, Krista Perreira, Martha Daviglus, Carmen…- Uptake of genetic testing
- Health Disparities
- Paper
- Pre-Recorded