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Publication
Confronting the "gray zones" of technology assessment: Evaluating genetic testing services for public insurance coverage in Canada
International Journal of Technology Assessment in Health CareDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Ethical, legal, and social issues in health technology assessment for prenatal/preconceptional and newborn screening: A workshop report
Public Health GenomicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Food additive models for the regulation of recombinant DNA technology under the federal Food, Drug, and Cosmetic Act
Food Drug Cosmetic Law JournalDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Additional Resource
Undiagnosed Diseases Network (UDN)
The Undiagnosed Diseases Network is a multi-site research study funded by the National Institutes of Health Common Fund that aims to improve diagnosis and care of patients with undiagnosed diseases…- undiagnosed diseases
- Disease
- Diagnosis
- etiology
- Clinical Data
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Grant Abstract
Data-Sharing and Data-Withholding in Genetics Research
The specific aims of this study are to: confirm and extend previous work on the prevalence and nature of data sharing and withholding in academic genetics and its subfields; investigate the factors…- Data Collection
- Genetics
- governmental health /scientific organization
- health /scientific organization
- health administration
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Publication
Medical technology assessment of the ethical, social, and legal implications of pharmacogenomics: A research proposal for an internet citizen jury
International Journal of Technology Assessment in Health CareDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Intellectual property, technology transfer and manufacture of low-cost HPV vaccines in India
Nat BiotechnolDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Additional Resource
Ethics and Genomics Syllabus
This course developed by Vardit Ravitsky, PhD, and Ingrid Holm, MD, MPH, explores the science, the ethical debates and the main policy approaches to well-established and emerging genomics…- non-invasive prenatal testing
- Direct to Consumer Genetic Testing
- donor conception
- CRISPR-Cas9
- germline gene editing
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Publication
Attitudes, values, and socio-demographic characteristics that predict acceptance of genetic engineering and applications of new technology in Australia
Biotechnology JournalDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Can product-by-process patents provide the protection needed for proteins made by recombinant DNA technology?
Journal of The Patent and Trademark Office SocietyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…