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Grant Abstract
ELSI Research in Two Native American Communities
The specific aims of this project are: to identify the ethical, legal, and social implications of the HGP from the perspectives of two Native American communities, with particular emphasis on Native…- behavioral /social science research tag
- culture
- data collection methodology /evaluation
- Decision Making
- Ethics
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Publication
Ethical, legal and social implications (ELSI) regarding forensic genetic investigations (FGIs)
Journal of Academic Ethics -
Publication
Integrating ELSI study teams in paediatric genomic research efforts
Nature Reviews Genetics -
Grant Abstract
UCEER: Utah Center for Excellence in ELSI Research P20
The University of Utah Center for Excellence in ELSI Research (UCEER) will conduct strategic planning for ELSI research, training and mentoring, and conduct two pilot projects. The focus of the UCEER…- Aneuploidy
- Child
- Childhood
- Communication
- Communities
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Grant Abstract
ELSI Scale-Up: Large Sample Gene Discovery & Disclosure
This proposal rests on the assumption that rapid expansion of large sample gene discovery and disclosure projects raise major ethical, legal, social and policy challenges, to such an extent that it…- behavioral /social science research tag
- Clinical Research
- confidentiality
- Ethics
- Genetic Screening
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News
New 5th ELSI Congress Special Issue of AJOB Empirical Bioethics
We are pleased to announce the publication of a special issue of the AJOB Empirical Bioethics. This special issue includes four primary research papers, which were initially presented at the 5th… -
Publication
Charting the ethical frontier in newborn screening research: Insights from the NBSTRN ELSI researcher needs survey
Int J Neonatal Screen -
Collection
Ethical, Legal, and Social Implications (ELSI) at the Intersection of Genomics and Infectious Disease
Scientific and technological advances in the field of genomics have the potential to enable targeted clinical and public health measures to manage infectious disease outbreaks. The convergence of the…- genomics and infectious disease
- Covid-19
- ethical conduct of phylogenetic studies
- host genome testing
- data justice
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Grant Abstract
African American Community Review of Genetic Research
This is a qualitative, ethnographic study that is designed to generate a number of empirical examples of community review in action. Project investigators have established a working relationship with…- African American
- Clinical Research
- community
- culture
- Ethnic group
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Grant Abstract
Enhancing Diversity among Future ELSI Researchers
The proposed R25 Research Education Program is devoted to building a 15-month research mentorship program at the Johns Hopkins Berman Institute of Bioethics (BI) for students from diverse,…- Area
- Baltimore
- Bioethics
- career
- cohort