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  • Additional Resource

    Policy Statements, American College of Medical Genetics and Genomics

    The Advocacy Committee of the American College of Medical Genetics and Genomics (ACMG), chaired by Sheila Dobin, releases policy statements to promote the responsible application of genomics in…
  • Grant Abstract

    Outcomes of Education and Counseling for BRCA1 Testing

    Women at increased risk for developing breast and/or ovarian cancer and their first degree relatives will be offered BRCA1 gene testing. This study proposes to evaluate psychological and behavioral…
  • Publication

    Community Genetics screening in a pandemic: Solutions for pre-test education, informed consent, and specimen collection

    European Journal of Human Genetics
    Bronwyn Terrill, Lauren McKnight, Angela Pearce, Heather Gordon, William Lo, I-Chieh Jennifer Lee, Monica Runiewicz, Alex Palmer, Lesley Andrews, Edwin Kirk, Daniel Goldberg, John Tucker, David Murray, Warren Kaplan, Sarah Kummerfeld, Leslie Burnett
  • Publication

    Education in ethics

    Clinics in Perinatology
    Stirrat, Gordon M.
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…
  • Publication

    A DNA education

    Nature
    Staff, Editorial
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…
  • Additional Resource

    Statement Archive, American Society of Human Genetics

    The Statement Archive of the American Society of Human Genetics is a record of advocacy work by the organization for the purpose of promoting evidence based policies that benefit science, personal…
  • Grant Abstract

    Risk Evaluation and Education for Alzheimer's Disease (II)

    The Risk Evaluation and Education for Alzheimer's Disease (REVEAL) Study is an ongoing, multi-site research project that is designed to evaluate the psychological and behavioral impact of…
  • Publication

    The engagement of consumers in genetic education: Lessons learned

    Martinus Nijhoff
    Lloyd-Puryear, Michele A., Kyler, Penny, Weissman, Gloria
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…
  • Publication

    Video education about genetic privacy and patient perspectives about sharing prenatal genetic data: a randomized trial

    American Jouenal of Obstetrics Gynecology
    Christian M. Parobek, Margaret M. Thorsen, Phinnara Has, Paula Lorenzi, Melissa A. Clark, Melissa L. Russo, Adam K. Lewkowitz
  • Grant Abstract

    The Research Ethics Education Program in Jordan

    established countries in the Middle East and North Africa (MENA) region with a high per-capita university education and progressive research agenda. It is also the hub for pharmaceutical drug…