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Video
ELSIcon2022 Paper: Cultivating just & equitable genomics research partnerships with community health centers
ELSIcon2022 • Paper • June 2, 2022 Johanna Crane, Carolyn Neuhaus Research partnerships with community health centers serving ethnically and economically diverse communities present an…- Live
- Paper
- health disparities
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Grant Abstract
Genetic Privacy and Identity in Community Settings - GetPreCiSe
Concerns about privacy and personal identity impede use of data about genomic variation, phenotypes, demographics, and exposures from large numbers of people to uncover the contributions of such…- Attitude
- Automobile Driving
- base
- Belief
- Benefits and Risks
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Video
ELSIcon2022 Panel: Out of the tower and onto the ground: engaging communities and scientists in emergent research priorities
ELSIcon2022 • Panel • May 27, 2022 Sara Ackerman, Julia Brown, Keolu Fox, Sandra Soo-Jin Lee ELSI scholars work under varied institutional support structures that make it difficult to…- Recruiting diverse participants to precision medicine research
- genomics research
- biobank
- equity and justice in genetics
- Panel
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In the Media
Genomes Show the History and Travels of Indigenous Peoples
Scientific American |Keolu Fox- Indigenous Peoples
- Indigenous data
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Publication
Equitable community-based participatory research engagement with communities of color drives All of Us Wisconsin genomic research priorities
Journal of the American Medical Informatics Associationby Suma K Thareja, Xin Yang, Paramita Basak Upama, Aziz Abdullah, Shary Pérez Torres, Linda Jackson Cocroft, Michael Bubolz, Kari McGaughey, Xuelin Lou, Sailaja Kamaraju, Sheikh Iqbal Ahamed,… -
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Grant Abstract
Community-Based Evaluation of APOL1 Genetic Testing in African Americans
Endstage renal disease (ESRD) or kidney failure affects over 500,000 persons in the United States and disproportionately affects racial and ethnic minority populations. Compared to whites, African…- advocacy organizations
- Affect
- African American
- Age
- Anxiety
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Publication
Indigenous population genome databases for India and South Asia: Emerging need for health and social applications
Journal of Genetics