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Publication
Advancing precision medicine with gene and cell therapy in Malaysia: Ethical, legal, and social implications (ELSI)
Human Gene Therapy -
Grant Abstract
Community-engaged Research Toward Precision Medicine with AIAN People
The overall goal of the proposed research is to advance policy approaches to support Precision Medicine research (PMR) with American Indian and Alaska Native (AIAN) people through culturally…- Alaska
- Alaska Native
- American Indians
- Area
- biomarker discovery
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Publication
Community engagement in precision medicine research: Organizational practices and their impacts for equity
AJOB Empirical Bioethics -
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Publication
Increasing inclusivity in precision medicine research: Views of deaf and hard of hearing individuals
Genetics in Medicine -
Video
Democratic approaches to precision medicine and genetics research: comparing inclusiveness and effectiveness of PPI practices to the pursuit of the public good
Ilaria Galasso, PhD - University College Dublin ELSIconversations - March 5, 2021 In this paper we scrutinize emerging public involvement practices as a response to the major ELSI challenges around…- precision medicine research
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Publication
The urgent need for health data justice in precision medicine
The American Journal of Bioethics -
Publication
Overcoming barriers to health equity in precision medicine research
The American Journal of Bioethics -
Publication
Invisible: People with disability and (in)equity in precision medicine research
The American Journal of Bioethics -
Video
ELSIcon2022 Paper: When Covering and Discovering Are at Odds: How the Logic of Health Insurance Undercuts the Promise of Precision Medicine for People with Hereditary Cancer Risks
ELSIcon2022 • Paper • June 1, 2022 Mark Schlesinger, Rachel Grob, Emily Mrig The past two decades have seen significant advancement in precision medicine approaches to preventing and treating…- Live
- Paper
- Access to genetic screening and therapies