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Publication
Sharing GJB2/GJB6 genetic test information with family members
Journal of Genetic CounselingDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Sharing knowledge: A new frontier for public-private partnerships in medicine
Genome MedicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Accountability for reasonableness as a framework for the promotion of fair and equitable research
Hastings Center Report -
News
Public Health Genomics Seeks Perspective Papers for Special Issue
Call for Perspective Papers Public Health Genomics is the first periodical to focus on rigorous research and evidence-based practice at the intersection of genomic discovery and public health.… -
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Publication
Reassessing the ethics of molecular HIV surveillance in the era of cluster detection and response: Toward HIV data justice
American Journal of Bioethics -
Publication
Managing genetic discrimination: Strategies used by individuals found to have the Huntington disease mutation
Clinical GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Managing self-responsibility through other-oriented blame: Family accounts of genetic testing
Social Science and MedicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Paid to share: IVF patients, eggs and stem cell research
Social Science and MedicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
ELSI Scale-Up: Large Sample Gene Discovery & Disclosure
This proposal rests on the assumption that rapid expansion of large sample gene discovery and disclosure projects raise major ethical, legal, social and policy challenges, to such an extent that it…- behavioral /social science research tag
- Clinical Research
- confidentiality
- Ethics
- Genetic Screening