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News
ELSI-related presentations at ASBH 2022
Please click link below to open entire schedule as a pdf file: Document ELSI talks at ASBH 2022.pdf (163.99 KB) Schedule Thursday – Oct 27th How… -
Video
ELSIcon2022 Panel: Extending the Belmont Principles: Sovereignty and Solidarity in Genomic Research
ELSIcon2022 • Panel Session 2 • May 31, 2022 Vanessa Hiratsuka, Bobby Saunkeah, Joon-Ho Yu, Alize Ece Gunay, Krystal Tsosie The Belmont principles of respect for persons, beneficence, and…- Live
- Panel
- Community oversight of research
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News
Corporate wellness programs, a threat to privacy?
Genetic testing is increasingly offered as a benefit in employer-sponsored health and wellness programs. Despite rapidly growing popularity of wellness programs, there is little evidence to support…- Genetic Testing
- Wellness programs
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Video
ELSIcon2022 Panel: If we build it will they come? Navigating ELSI considerations for broad and responsible use of All of Us data by non-traditional researchers
ELSIcon2022 • Panel • June 3, 2022 Subhashini Chandrasekharan, Laura Beskow, Rosario Isasi, Stephen Sodeke The All of Us Research Program is in the process of collecting biospecimens and…- Live
- Panel
- Data and data stewardship
- precision medicine
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Publication
Ethical issues in fetal therapies of life- threatening malformations
European Journal of Pediatrics -
Publication
Genome editing tool CRISPR-Cas: Legal and ethical considerations for life science
Gene Editing in Plants -
Research Tool
How Does Genetic Ancestry Testing Affect Perceptions of Race? Conjoint Survey Instrument
The Conjoint Survey Instrument is a survey instrument developed for the study “How Does Genetic Ancestry Testing Affect Perceptions of Race?” The study explores how respondents make racial… -
Grant Abstract
An ELSI-Integrated Evaluation of the Family-Level Utility of Pediatric Genomic Sequencing
PROJECT SUMMARY/ABSTRACT Substantial resources have been devoted to policy evaluation of clinical genomic sequencing that hinge on the conceptualization and measurement of utility. However, most… -
Job Posting
Assistant/Associate Professor, Bioethics Law and Medical Professionalism
The Department of Community Health and Family Medicine (CHFM), Program in Bioethics Law and Medical Professionalism at the University of Florida, College of Medicine in Gainesville, Florida is…- Bioethics