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Grant Abstract
Pulmonary Benefits of Cystic Fibrosis Neonatal Screening
Although cystic fibrosis (CF) is the most common, life threatening autosomal recessive genetic disorder of the white population, there are often delays in diagnosis and hence initiation of treatment…- adolescence (12-20)
- child (0-11)
- Cognition
- cost effectiveness
- Cystic Fibrosis
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Publication
The ethics of translational science: Imagining public benefit in gene-environment interaction research
Engaging Science, Technology, and Society -
Publication
Systematic review of the economic evaluation of returning incidental findings in genomic research
Frontiers in Public Health -
Publication
Patient and family social media use surrounding a novel treatment for a rare genetic disease: A qualitative interview study
Genetics in Medicine -
Publication
A narrative review on pharmacogenomics in psychiatry
Journal of Clinical Psychopharmacology -
Publication
Ethical issues in stem cell research, therapy, and public policy
University of California PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Is taller really better?: Growth hormone therapy in short children
Perspectives In Biology and MedicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
The kingdom of genes: Why genes from animals and plants will make better humans
American Journal of BioethicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Discovering and patenting human genes
Hart Pub.Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -