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Publication
Communicating genetic information: A difficult challenge for future pediatricians
BMC Medical EducationDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
The reuse of genetic information in research and informed consent
European Journal of Human Genetics -
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Publication
Disclosing individual results in dementia research: A proposed study participant's bill of rights
Journal of Alzheimer's Disease -
Publication
Is there a duty to reinterpret genetic data? The ethical dimensions
Genetics in MedicineAppelbaum and colleagues argue for the recognition of an ethical duty to reinterpret genetic variants, outline the elements of it, and consider who should bear responsibility. -
Video
December 2024 EFF: Building a Diverse ELSI Workforce: What does this mean and how should we do it?
Bioethics as a field was catalyzed by grave injustices such as the US Public Health Service Untreated Syphilis Study at Tuskegee. Similarly, a major rationale for ELSI was to address the injustices…- diversity
- challenges
- Engaging diverse communities
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Publication
The goldilocks conundrum: Disclosing discrimination risks in informed consent
Journal of Genetic Counseling -
Publication
Accuracy of cancer family histories: Comparison of two breast cancer syndromes
Genet Test