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Video
Defining the Critical Components of Informed Consent for Genetic Testing
Kelly Ormond, MS, CGC - Stanford University ELSIconversations - March 26, 2021 The Consent And Disclosure Recommendations (CADRe) workgroup within ClinGen (Clinicalgenome.org) consortia has been…- Genetic Testing
- Informed Consent
- clinical genetics
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Grant Abstract
Ethical Guidance for Family Studies in Human Genetics
This project will develop ethical guidance for presymptomatic testing for autosomal dominant, late onset diseases for which genetic probes are available (familial Alzheimer disease, amyotrophic…- Alzheimer's Disease
- amyotrophic lateral sclerosis
- autosomal dominant trait
- Belief
- case history
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Grant Abstract
Human Genome Project: Science, Law, and Social Change
This conference, The Human Project: Science, Law, and Social Change in the 21st Century, will bring together 300-500 physicians, lawyers, consumers, ethicists, and scientists to explore the impact of…- biotechnology
- Ethics
- genetic disorder diagnosis
- genetic techniques
- Genetics
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Grant Abstract
Social Construction of Benefit in Gene Transfer Research
The purpose of this study is to determine how the prospect of direct benefit to research subjects in gene transfer research (GTR) (usually called 'gene therapy') is understood and discussed…- behavioral /social science research tag
- Comprehension
- Ethics
- gene therapy
- Health behavior
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Publication
Direct-to-consumer genomic testing through an ethics lens: Oncology nursing considerations
Clinical Journal of Oncology Nursing -
Grant Abstract
Center for Research on the Ethical, Legal and Social Implications of Psychiatric
This application proposes the establishment of a Center for Research on the Ethical, Legal and Social Implications of Psychiatric, Neurologic and Behavioral (PNB) Genetics at Columbia University…- Academic Medical Centers
- Address
- Area
- base
- Behavior
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Publication
Public-private partnerships in biomarker research
ElsevierDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Publication
COVID-19 one year into the pandemic: From genetics and genomics to therapy, vaccination, and policy
Human Genomics -