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Publication
Downstream exclusion in rural rare disease precision medicine research
The American Journal of Bioethics -
Video
Part 1. Ethical, Legal and Social Implications (ELSI) on the Frontiers of Precision Medicine Research at National Scale: Experiences of the NIH All of Us Research Program
Katherine D. Blizinsky, PhD - National Institutes of Health ELSIconversations - April 16, 2021 The NIH All of Us Research Program (AoURP) aims to collect genomic, biological, environmental, and…- precision medicine research
- precision medicine
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Video
Part 2. Ethical, Legal and Social Implications (ELSI) on the Frontiers of Precision Medicine Research at National Scale: Experiences of the NIH All of Us Research Program
Subhashini Chandrasekharan, PhD and Katherine D. Blizinsky, PhD - National Institutes of Health ELSIconversations - April 16, 2021 The NIH All of Us Research Program (AoURP) aims to collect genomic…- precision medicine
- precision medicine research
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Publication
The role of race and ethnicity in views toward and participation in genetic studies and precision medicine research in the United States: A systematic review of qualitative and quantitative studies
Molecular Genetics & Genomic Medicine -
Publication
Innovating for a just and equitable future in genomic and precision medicine research
The American Journal of Bioethics -
Publication
Genome Tunisia Project: Paving the way for precision medicine in North Africa
Genome Medicine -
Publication
"Who is watching the watchdog?": Ethical perspectives of sharing health-related data for precision medicine in Singapore
BMC Medical Ethics -
Video
ELSIcon2022 Paper: When State Laws Conflict: Choice of Law Challenges in Multi-Site Research
ELSIcon2022 • Paper • May 31, 2022 Laura Beskow, Leslie Wolf Our previous research demonstrated that precision medicine research implicates numerous state laws, including human subjects…- Live
- Paper
- Laws and research sites
- precision medicine
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Publication
Returning personalized, genetic health test results to individuals of African descent or ancestry in precision medicine research
Health Affairs Scholar -
Publication
Spotlighting structural constraints on decisions about participation in genomic and precision medicine
AJOB Empirical Bioethics