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1511 - 1520 of 4459 Topics
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Publication
Moving genomics into the clinic: Platforms for implementing clinical genomic data-sharing in ways that address ethical, legal and social implications
Journal of Law and Medicine -
Grant Abstract
Exploring parental perspectives on pediatric genome testing, research, and data management in a multicultural population
Project Narrative Racial/ethnic disparities in genomic testing and research participation threaten to exacerbate inequities in health outcomes, particularly in pediatrics.3-7 Given that current…- Algorithms
- Adolescent
- African American
- Asian
- Consent
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Additional Resource
Consensus Study Report, Society's Choices: Social and Ethical Decision Making in Biomedicine, the National Academies of Sciences, Engineering, and Medicine (NASEM) (1995)
This National Academies Press publication documents the evidence-based findings, conclusions, and recommendations of a committee of experts on the functions of institutional review boards, the role…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Consensus Study Report, Assessing Genetic Risks: Implications for Health and Social Policy, the National Academies of Sciences, Engineering, and Medicine (NASEM) (1994)
This National Academies Press publication documents the evidence-based findings, conclusions, and recommendations of a committee of experts charged with investigating several issues associated with…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Consensus Study Report, Responsible Research with Biological Select Agents and Toxins, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2009)
This National Academies Press publication documents the evidence-based consensus of a committee of experts on the physical security of laboratories and the reliability of personnel with access to…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Publication
Return of incidental findings in genomic medicine: Measuring what patients value--development of an Instrument to Measure Preferences for Information from Next-generation Testing (IMPRINT)
Genet MedClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): U01 HG0006507-01, 265508 -
Grant Abstract
The Human Genome Initiative and Access to Health Care
This project will provide an overview of the impact of the HGP on access to health care. In addition to scholarly articles, the product of this research will be a book on the HGP and access to health…- Books
- Ethics
- gene therapy
- Genetic Counseling
- genetic disorder
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Job Posting
Clinical Ethics Fellowship
Based in Cleveland, Ohio, University Hospitals (UH) offers primary, community-based, and specialty healthcare services for children and adults throughout northeast Ohio. On a mission to heal, teach,…- Clinical Ethics
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Video
A Survey on Public Perception toward the Korean National Bio Big Data Project
ELSIcon2022 • Pre-recorded Paper Jihyun Yang - Yonsei University College of Medicine Ilhak Lee Hyun-Young Park Chai Hee Youl Jeong Eun Kim Hannah Kim Jihyun Yang A Survey on Public…- law
- Regulation
- Governance
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News
Corporate wellness programs, a threat to privacy?
Genetic testing is increasingly offered as a benefit in employer-sponsored health and wellness programs. Despite rapidly growing popularity of wellness programs, there is little evidence to support…- Genetic Testing
- Wellness programs