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Publication
PS3-16: Access and collaboration with the Kaiser Permanente Research Program on Genes, Environment, and Health (RPGEH)
Clinical medicine & research -
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Publication
Down syndrome screening and diagnosis practices in Europe, United States, Australia, and New Zealand from 1990–2021
European Journal of Human Genetics -
Publication
Governing heritable human genome editing: A textual history and a proposal for the future
The CRISPR Journal -
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Video
January 2025 EFF: Public-Private Partnerships for Gene Therapies: What Does the Public Get?
Publicly-funded researchers frequently transfer their gene therapy and gene-editing medical research to venture capital-funded startups for clinical development. In tandem, the public sector… -
Publication
A representativeness-informed model for research record selection from electronic medical record systems
Proceedings of the American Medical Informatics Association Annual Fall Symposium (AMIA)The Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe). Grant number(s): RM1HG008999 -