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Publication
Ethical considerations for forensic genetic frequency databases: First report conception and development
Forensic Science International Genetics -
Publication
Philosophical theory, scientific practice, and public policy
Duncker & HumblotDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Cell and gene therapy regulatory, pricing, and reimbursement framework: With a focus on South Korea and the EU
Frontiers in Public Health -
Publication
Risk estimates and genetic screening as public policy
World Review of Nutrition and DieteticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Perspectives of researchers, science policy makers and research ethics committee members on the feedback of individual genetic research findings in African genomics research
BMC Medical Ethicsby Faith Musvipwa, Ambroise Wonkam, Benjamin Berkman, and Jantina de Vries -
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Response to open peer commentaries on “ethical issues in using behavior contracts to manage the ‘difficult’ patient family”
The American Journal of Bioethics -
Publication
Specific measures for data-intensive health research without consent: A systematic review of soft law instruments and academic literature
European Journal of Human Genetics -
Additional Resource
Genetical Ethics Syllabus
This course developed by William Allen and Marta Wayne covers topics pertaining to ethics, science policy, and translation in genetics research, as well as responsible conduct of research.- syllabus
- Eugenics
- genetic discrimination
- data management
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Publication
Diversity, profit, control: An empirical study of industry employees' views on ethics in private sector genomics
AJOB Empirical BioethicsThe key themes that emerged from Walker’s interviews with members of the U.S. private sector genomics industry were ethical concerns about the lack of diversity in genetic datasets, issues related to…