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Additional Resource
Workshop Proceedings, Stem Cell Therapies: Opportunities for Ensuring the Quality and Safety of Clinical Offerings: Summary of a Joint Workshop, the National Academy of Sciences & the International Society for Stem Cell Research (2014)
This National Academies Press publication summarizes the proceedings of a workshop that explored the evidence base for clinical application of stem cell technologies and ways to assure quality. The…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Grant Abstract
Impact of HGP Derived Technology on Genetic Testing, Screening and Counseling: Cultural, Ethical, and Legal Issues
This project investigates the area of newborn genetic screening programs and policies governing state sponsorship of genetic screening. Legal aspects of confidentiality and informed consent will be… -
Additional Resource
Oral History Collection, National Human Genome Research Institute (NHGRI)
The National Human Genome Institute’s Oral History Collection features video-recorded discussions with influential figures in the field of genomics and the history of the institute. Intended for…- oral history
- history of genomics
- NHGRI
- genomics history
- video
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Video
Editing Future Generations, Centering Translational Justice: How Do Potential End Users Imagine the Benefits and Tradeoffs of Prenatal Genetic Therapies?
ELSIcon2024 • Panel • June 12, 2024 Authors: Corresponding Author: Julia Brown, PhD (she/her/hers) - University of California, San Francisco Panelist: Marsha Michie, PhD (she/her/hers…- ELSIcon2024
- 6th ELSI Congress
- equity and justice in genetics
- Gene therapies and gene editing
- reproductive genetics
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Grant Abstract
Ethical Priorities in for Clinical Uses of Genome Research
This study will focus on setting priorities in the screening, testing, counseling, and treatment of pre-symptomatic and contingent genetic conditions. Under the assumption that unlimited resources…- biotechnology
- Ethics
- Family Planning
- gene therapy
- Genetic Counseling
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Publication
Ethical, legal and regulatory issues of paediatric translational research. Call for an adequate model of governance
European Journal of Health Law -
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Publication
Justifying anti-doping: The fair opportunity principle and the biology of performance enhancement
European Journal of Sport Science -
Publication
Global governance of human genome editing: What are the rules
Annual Review of Genomics and Human Genetics