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Publication
All that glisters is not gold: Genetics and social science
Behavioral and Brain Sciences -
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News
Using a Family Advisory Council to Understand the Informational Needs of Prospective Gene Therapy Trial Participants: An Interview with the Co-PIs of the SCDGENE CERA Working Group
Sickle cell disease (SCD), characterized by severe pain crisis and progressive organ damage as well as early death, is one of the most common inherited blood disorders in the world. However, since 90…- sickle cell disease
- gene therapy
- Sickle Cell
- gene therapies
- community based participatory research
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Publication
A review of the psychosocial effects of false-positive results on parents and current communication practices in newborn screening
Journal of Inherited Metabolic Disease -
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Publication
Genetic justice must track genetic complexity
CQ: Cambridge Quarterly of Healthcare EthicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Diversity in genetic counseling: Strategies from the LEND network
Journal of Genetic CounselingDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…