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Video
ELSIcon2022 Paper: “Big bioethics” research: Is the ELSI community ready?
ELSIcon2022 • Paper • May 31, 2022 Joel Pacyna, Richard Sharp ELSI research has traditionally sought to give patients greater voice—especially patients at the margins of healthcare who may be…- Live
- Paper
- Reflections on the ELSI field
- Genetic testing and screening
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Grant Abstract
Engaging Minority Communities in Genetics Policy Making
This renewal project, conducted by a consortium of three universities (University of Michigan, Michigan State University and Tuskegee University) will develop a process for engaging minority…- African American
- Attitude
- behavioral /social science research tag
- community
- Decision Making
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Research Tool
CSER Phase 1: Consent Form (Endometrial/Uterine Cancer) - The NEXT (New EXome Technology in Medicine) Medicine Study
This consent form for the NEXT Medicine Study is designed for individuals with endometrial/uterine cancer or a close family member with this type of cancer. It contains information about the study… -
Research Tool
CSER Phase 1: Consent Form (Colorectal Cancer/Polyposis) - The NEXT (New EXome Technology in Medicine) Medicine Study
This consent form for the NEXT Medicine Study is designed for individuals with colorectal cancer/polyposis or a close family member with the syndrome. It contains information about the study and the… -
Grant Abstract
University of Michigan Training Program in ELSI Research
PROJECT NARRATIVE Advances in genomic science are rapidly presenting both great opportunities and complex challenges for medicine and public health. In order for the potential benefits of these…- ethical legal social implication;Michigan;Research;Training Programs;Universities
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Publication
Non-invasive prenatal testing for fetal
chromosome abnormalities: Review of clinical and ethical issuesApplication of Clinical Genetics -
Grant Abstract
University of Michigan Training Program in ELSI Research
PROJECT NARRATIVE Advances in genomic science are rapidly presenting both great opportunities and complex challenges for medicine and public health. In order for the potential benefits of these…- ethical legal social implication
- Michigan
- Research
- Training Programs
- Universities
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Additional Resource
Consensus Study Report, Ensuring the Integrity, Accessibility, and Stewardship of Research Data in the Digital Age, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2009)
This National Academies Press publication documents the evidence-based consensus of a committee of experts on research data management and stewardship in the context of digital technologies. It…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding