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Video
Will it be easier to cure sickle cell disease through gene therapy than prevent the disease through pre-implantation genetic testing for the selection of unaffected embryos?
ELSIcon2022 • Pre-recorded Flash Jeanne O'Brien, MD, MSc - Shady Grove Fertility, Rockville MD Sigal Klipstein, MD - InVia Fertility Specialists Joshua Combs - Eunice Kennedy Shriver National…- gene therapy
- Gene Editing
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Publication
Returning a research participant's genomic results to relatives: Analysis and recommendations
J Law Med EthicsClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): 1R01CA154517 -
Publication
Ethical, legal and social issues in human stem cell research, reproductive and therapeutic cloning: A report from the Bioethics Advisory Committee, Singapore
Bioethics Advisory CommitteeDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
Protecting Human Subjects in Genetic Enhancement Research
Researchers and bioethicists have developed guidelines to protect human subjects in clinical experiments involving genetic technologies. However, these rules were developed for investigations of…- Autoexperimentation
- base
- Bioethics Consultants
- Clinical
- Clinical Research
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Publication
Reproductive decision making of aunts and uncles of a child with cystic fibrosis: Genetic risk perception and attitudes toward carrier identification and prenatal diagnosis
American Journal of Medical GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
ELSI Congress
ELSIcon2024: Reimagining the Benefits of Genomic Sciences
Social, cultural, political, and economic developments around the world, along with the rapid technological transformation of genomic science, raise considerations for the ethical conduct and… -
Grant Abstract
The Stanford Training Program in ELSI Research
PUBLIC HEALTH RELEVANCE The proposed research training program at Stanford University is to create independent scholars who can conduct rigorous research on ethical, legal and social implications…- Research
- Training Programs
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SNAPSHOT
Direct-To-Consumer Testing in the Genomic Age
Technological developments are making it possible to read a person’s entire genetic code, or genome, more rapidly and at a lower cost than ever before. Personal genome sequencing is allowing…- Direct to Consumer Genetic Testing
- Human Genome Project
- ELSI
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Publication
The need for recognition of core professional groups in genetics healthcare services in Europe
American Journal of Human Genetics -
Grant Abstract
GURU: Graduate and Undergraduate Researchers of UCEER
PROJECT NARRATIVE The purpose of this R25 Diversity Action Plan grant proposal is to create a program that will equip students with disabilities with mentoring, research, and curricular resources…- Academia
- Address
- Advocate
- Affect
- Applications Grants