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ELSIcon2022 Paper: Disrupting the status quo: a new model for benefit sharing in genomics research, a case study from South Africa
ELSIcon2022 • Paper • June 2, 2022 Erin Burke, Michèle Ramsay, June Fabian Genetics researchers have earned the label “extractive biocolonialists” because they collect samples and fail to…- Live
- Paper
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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Publication
Where the genetic code meets the zip code: Advancing equity in rare disease genomics
Hastings Center Report -
Publication
Impact of integrating genomic data into the electronic health record on genetics care delivery
Genetics in Medicine -
Publication
Race, distributive justice and the promise of pharmacogenomics: Ethical considerations
Am J Pharmacogenomics -
Additional Resource
Consensus Study Report, The Smallpox Vaccination Program: Public Health in an Age of Terrorism, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2005)
This National Academies Press publication documents the evidence-based consensus of a committee of experts on the U.S. preparedness for the deliberate release of biological agents. It outlines the…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Workshop Proceedings, Indo-U.S. Workshop on Challenges of Emerging Infections and Global Health Safety, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2016)
This report summarizes the proceedings of a workshop hosted by the National Academy of Sciences and Indian National Science Academy in November 2014. The workshop explored global issues related to…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Working Group Summaries, The Genomic Revolution: Implications for Treatment and Control of Infectious Disease, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2006)
This publication summarizes the proceedings of the conference, “The Genome Revolution: Implications for Treatment and Control of Infectious Disease.” Organizers challenged 11 conference working…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Grant Abstract
Enhancement Ethics and the Molecular Genetics of Aging
Advances in the molecular genetics of cellular aging raise the prospect of intervening in the human aging process to dramatically extend the human life span. The development of such interventions… -
Publication
Patients' and professionals' views on autonomy, disability, and "discrimination": Results of a 36-nation survey
Kluwer Academic/Plenum Publishers -
Publication
The UK biobank: A shining example of genome-wide association study science with the power to detect the murky complications of real-world epidemiology
Annual Review of Genomics and Human Genetics