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Video
ELSIcon2022 Paper: Genetic testing for hereditary cancer risk in India: A Case Study
ELSIcon2022 • Paper • May 31, 2022 Pooja Chitre, Janis Geary, Robert Cook Deegan India has a distinct history of dynamic migration, cultural and ethnic diversity, and widespread endogamy and…- Live
- Paper
- Data and data stewardship
- Genetic testing and screening
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Publication
Cultural competence and informed consent in international health research
Camb Q Healthc Ethics -
Publication
Capacity-building for stroke genomic research data collection: The African neurobiobank ethical, legal, and social implications project experience
Biopreservation and Biobanking -
Publication
ESHRE PGD consortium data collection IV: May-December 2001
Human ReproductionDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
What do breast cancer previvors tell us about their stories? To know or not to know?
Seminars in Oncology Nursing -
Video
INSIGHT @ Work: An Interdisciplinary Study on the Ethical, Legal and Social, Implications (ELSI) of Voluntary Workplace Genomic Testing (wGT)
ELSIcon2022 • Pre-recorded Flash Alyx Vogle, CGC; Betty Cohn; Rebecca Ferber; Kerry Ryan; Gregory Feero; Debra Mathews; Anya Prince; Kayte Spector-Bagdady; Kunai Sanghavi; Wendy…- Genetic Testing
- Genetic Screening
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Grant Abstract
Community Consultation as an Ethics Method
Over the past decade researchers, institutions and research sponsors have engaged in various forms of discourse with minority and indigenous populations in the US and abroad. These "community…- behavioral /social science research tag
- Clinical Research
- community health services
- data collection methodology /evaluation
- Ethics
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Publication
Precaution, environmental science, and preventive public policy
Island PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
The current status and improvement directions of legal rules regarding Chinese national gene banks for farm animal genetic resources
Frontiers in Genetics