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Video
ELSIcon2024: Attitudes, Values, Preferences, Oh My! What Stated Preference Methods Can Bring to ELSI Research
ELSIcon2024 • Paper • June 10, 2024 Authors: Speaker: Taylor Montgomery, MPH (she/her/hers) – Harvard University Quantitative researchers studying the Ethical, Legal, and Social…- ELSIcon2024
- 6th ELSI Congress
- Methodology and study design
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Video
ELSIcon2022 Paper: Parent-reported barriers and facilitators to accessing care recommended from genomic sequencing in pediatric cancer patients
ELSIcon2022 • Paper • June 3, 2022 Presented by: Blake Vuocolo Mary Majumder, Jill Robinson, Amanda Gutierrez, Lauren Desrosiers, Sarah Scollon, D. Will Parsons, Sharon Plon, Amy McGuire…- Live
- Paper
- Access to genetic screening and therapies
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Publication
Valuing genetic and genomic testing in France: Current challenges and latest evidence
Journal of Community Genetics -
Additional Resource
Workshop Proceedings, Life Sciences and Related Fields: Trends Relevant to the Biological Weapons Convention, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2011)
This National Academies Press publication summarizes the proceedings of a convention that explored the biosecurity implications of developments in the life sciences. The workshop was convened by the…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Publication
Personal identity and the moral appraisal of prenatal therapy
Springer Science+Business Media -
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Publication
Benefit-sharing with human participants in health research in South Africa: A call for clarity
Developing World Bioethics -
Publication
Rewriting the "points to consider": The ethical impact of guidance document language
Hum Gene Ther