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161 - 170 of 7195 Topics
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Publication
Digital sequence information between benefit-sharing and open data
Journal of Law and the Biosciences -
Job Posting
Senior Health Science Policy Analyst
The All of Us Research Program Policy Office is seeking exceptional candidates for a Senior Health Science Policy Analyst position opening in our Ethical, Legal, and Social Implications (ELSI)Team…- Policy Analysis
- ELSI
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Publication
Genomic research and wide data sharing: Views of prospective participants
Genetics in Medicine -
Additional Resource
The Qualitative Data Repository (QDR), Syracuse University
The Qualitative Data Repository (QDR) is a dedicated archive for storing and sharing digital data collected via qualitative and multi-method research in the social sciences (with an initial focus on…- qualitative data
- data repository
- QDR
- digital data
- data archive
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Video
ELSIcon2022 Paper: An ELSI-informed strategy to use DNA data for humanitarian family reunifications
ELSIcon2022 • Paper • May 31, 2022 Sara H Katsanis, Diana Madden Family separation—whether caused by armed conflict, repressive regimes, disasters, or immigration policies—is traumatic for…- Live
- Paper
- Data and data stewardship
- identity
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Video
5. The NIH Biosketch
Updated on 11/6/2020 This video is focused on helping you prepare a stellar NIH biosketch for your ELSI grant application.- Grantsmanship
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Additional Resource
Viewing Translational Genomics through an Ethical, Legal/Policy, Social Implications (ELSI) Lens Syllabus
This core developed by Jennifer B McCormick examines fundamental concepts in scholarship on the ethical, legal/policy, social implications of genetic and genomic science. These include how the field…- syllabus
- translational genomics
- personalized medicine
- genetic discrimination
- return of results
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Additional Resource
Genomic Data Toolkit, Global Alliance for Genomics and Health (GA4GH)
The Genomic Data Toolkit produced by the Global Alliance for Genomics and Health (GA4GH) includes resources to support genomic data sharing such as machine readable consent guidance, a catalogue of…- GA4GH
- policy-framing
- genomic data
- Human Rights
- genomic data sharing
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News
The Sulston Project: Making the Knowledge Commons for Interpreting Inherited Cancer Risk More Effective
The Sulston Project is a joint research effort at Arizona State University and Baylor College of Medicine named after John Sulston, the champion of open science who, with Bob Waterston, crafted the…- Genetic Data Sharing and Management
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Publication
Data stewardship in FTLD research: Investigator and research participant views
Alzheimer's & Dementia