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Publication
Opinion on ethical aspects of patenting inventions involving human stem cells. The European Group on Ethics in Science and New Technologies to the European Commission. 7 May 2002
Law and the Human Genome ReviewDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
A Framework for Disability Perspectives on HGP
The Human Genome Project (HGP) is a source of hope and a cause for concern for people with disabilities and their families. Few researchers have solicited the input of the disability community about…- Attitude
- behavioral /social science research tag
- Clinical Research
- Data Collection
- developmental disease /disorder
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Collection
Addressing Algorithmic Unfairness in Healthcare Artificial Intelligence
Artificial intelligence (AI) healthcare technology can solve our most complex and intransigent health issues. It has the potential to enhance healthcare quality, improve access, reduce cost, and…- Artificial intelligence
- Data Set
- Data Collection
- Big Data
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Grant Abstract
Intergenerational Monitoring in Clinical Trials of Germline Gene Editing: Ethical, Legal, and Social Issues
Project Summary The breakneck pace of development towards potential uses of germline gene editing (GGE) in medicine raises some very crucial ethical questions. Though much research still needs to be…- biobank
- Bioethical Issues
- Bioethics
- Bioethics Consultants
- Cell Therapy
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Publication
Toward an ethically sensitive implementation of noninvasive prenatal screening in the global context
Hastings Center Report -
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Grant Abstract
Societal Impact of Human Genetic Engineering
The purpose of this project is to develop models for broad-based community dialogue to examine the value and ethical dimensions of emerging technologies in applied human genetics. The project will be…- curriculum
- Ethics
- genetic disorder
- genetic manipulation
- human population genetics
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Publication
How does the mode of inheritance of a genetic condition influence families? A study of guilt, blame, stigma, and understanding of inheritance and reproductive risks in families with X-linked and autosomal recessive diseases
Genetics in MedicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…