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Research for newborn screening: Developing a national framework

Pediatrics

Botkin, Jeffrey R.

2005

Publication

dbGaP data access requests: A call for greater transparency

Sci Transl Med

Walker, Lorelei, Starks, Helene, West, Kathleen M., Fullerton, Stephanie M.

2011

Publication

The ethics of consent in a shifting genomic ecosystem

Annual Review of Biomedical Data Science

Soo-Jin Lee, Sandra

2021

Publication

Ethics of DNA vaccine transfer for clinical research

Springer Nature

Ramalhinho, Ana Cristina, Castelo-Branco, Miguel

2020

Publication

Heritable human genome editing: Research progress, ethical considerations, and hurdles to clinical practice

Cell

Turocy, Jenna, Adashi, Eli Y., Egli, Dieter

2021

Publication

Incorporating ethnicity into genetic risk assessment for Alzheimer disease: The REVEAL study experience

Genet Med

Christensen, Kurt D., Roberts, J. Scott, Royal, Charmaine D. M., Fasaye, Grace-Ann, Obisesan, Thomas, Cupples, L. Adrienne, Whitehouse, Peter J, Butson, Melissa Barber, Linnenbringer, Erin, Relkin, Norman R., Farrer, Lindsay, Cook-Deegan, Robert, Green, Robert C.

2008

Duke University Center for Public Genomics. Grant number(s): P50HG003391

Publication

The race is on: Human embryonic stem cell research goes global

Stem Cell Rev Rep

Mindy C DeRouen, Jennifer B McCormick, Jason Owen-Smith, Christopher Thomas Scott

2012

Publication

Rare disease genomics and precision medicine

Genomics & Informatics

Juhyeon Hong, Dajun Lee, Ayoung Hwang, Taekeun Kim, Hong-Yeoul Ryu, Jungmin Choi

2024

Publication

Psychological issues in cancer genetics

Seminars in Oncology Nursing

Barbara Bowles Biesecker

1997

Publication

Sociotechnical safeguards for genomic data privacy

Nature Reviews Genetics

Zhiyu Wan, James W. Hazel, Ellen Wright Clayton, Yevgeniy Vorobeychik, Murat Kantarcioglu, Bradley A. Malin

2022

Wan and colleagues discuss threats to genomic data privacy, technical and legal safeguards, and ways to protect privacy and realize the benefits of data sharing.

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Research for newborn screening: Developing a national framework

dbGaP data access requests: A call for greater transparency

The ethics of consent in a shifting genomic ecosystem

Ethics of DNA vaccine transfer for clinical research

Heritable human genome editing: Research progress, ethical considerations, and hurdles to clinical practice

Incorporating ethnicity into genetic risk assessment for Alzheimer disease: The REVEAL study experience

The race is on: Human embryonic stem cell research goes global

Rare disease genomics and precision medicine

Psychological issues in cancer genetics

Sociotechnical safeguards for genomic data privacy

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