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Publication
Legal and ethical challenges of international direct-to-participant genomic research: Conclusions and recommendations
Journal of Law, Medicine & Ethics -
Publication
Perceived utility of genomic sequencing: Qualitative analysis and synthesis of a conceptual model to inform patient-centered instrument development
PatientClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): U01HG006487, U01HG007292, U01HG009610, U01HG006485, U01HG009599, U01HG007301, U24HG007307 -
Video
ELSIcon2022 Networking Session: Salt In My Soul: A Panel Discussion of the Documentary
ELSIcon2022 • Networking Session • June 2, 2022 Diane Shader Smith, Emily Kramer-Colinkoff, Will Battersby, Rebecca Mueller Salt In My Soul, a recently released documentary, chronicles the life…- Live
- Networking Session
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News
Code of Conduct
Code of Conduct for ELSIhub Events The ELSI community of scholars has attempted to nurture an academic culture that embraces the importance of diversity, supports the mentorship of young scholars,…- Code of Conduct
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Video
To Catch a Killer: Law Enforcement Uses of DNA Databases
Overview In 2018, law enforcement identified a suspect in the Golden State Killer case by matching the genomic profile of DNA left at crime scenes to those held in public databases and by using… -
News
Corporate wellness programs, a threat to privacy?
Genetic testing is increasingly offered as a benefit in employer-sponsored health and wellness programs. Despite rapidly growing popularity of wellness programs, there is little evidence to support…- Genetic Testing
- Wellness programs
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Grant Abstract
Human Subjects Protections in Prenatal Gene Transfer Research
This project explores whether the current regulations for protecting research subjects will provide adequate protections and guidance for future research involving human prenatal gene therapy. It…- Awareness
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- Benefits and Risks
- Child
- design
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