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March 2025 EFF: Enhancing Genetic Screening Access through Community Partnerships in the Cleveland African American Prostate Cancer Project
Genetic screening is crucial for identifying genetic risk factors for disease, but marginalized groups often have low participation due to lack of access, awareness, and mistrust of healthcare…- community building
- Prostate Cancer
- Community resource projects
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Video
ELSIcon2022 Paper: Navigating community engagement in clinical trial research
ELSIcon2022 • Paper • June 1, 2022 Mikaella Caruncho, Jennifer James, Galen Joseph In recent years, community engagement approaches to genomic research have grown in popularity, motivated by…- Live
- Paper
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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Video
ELSIcon2022 Paper: COVID, Prenatal Genetic Testing, and the Digital Divide: Beyond Technology
ELSIcon2022 • Paper • June 2, 2022 Ruth M. Farrell, Christina Collart COVID and the events of the past year have brought to light the insidious issues of systemic racism, disparities, and…- Live
- Paper
- Access to genetic screening and therapies
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Video
Democratic approaches to precision medicine and genetics research: comparing inclusiveness and effectiveness of PPI practices to the pursuit of the public good
Ilaria Galasso, PhD - University College Dublin ELSIconversations - March 5, 2021 In this paper we scrutinize emerging public involvement practices as a response to the major ELSI challenges around…- precision medicine research
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Publication
Genetic counselors' and community clinicians' implementation and perceived barriers to informed consent during pre-test counseling for hereditary cancer risk
Journal of Genetic Counseling -
Publication
Digital health tools in genomics: Advancing diversity, equity, and inclusion
Public Health Genomics -
Publication
"The Google of healthcare": Enabling the privatization of genetic bio/databanking
Annals of Epidemiology -
Grant Abstract
Human Genome Project: Community Conversations
This 3-Year Project (Amended Application) seeks support for an innovative inter-regional public education model, in New York and Arizona, aimed at developing and using public libraries as centers for…- biotechnology
- Clinical Research
- education evaluation /planning
- Ethics
- Genetic Screening