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Publication
Participants' recall and understanding of genomic research and large-scale data sharing
J Empir Res Hum Res Ethics -
News
A Bigger View: Ingrid Holm on Sharing Research Tools
CERA staff spoke with Ingrid A. Holm, MD, MPH, Professor of Pediatrics, Harvard Medical School, in April about two research instruments she deposited into the Research Tools Database on…- research tools
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Publication
A community effort to protect genomic data sharing, collaboration and outsourcing
Genomic MedicineThe Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe). Grant number(s): RM1HG009030 -
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Publication
Beyond our borders? Public resistance to global genomic data sharing
PLoS BiolDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Publication
Beyond our borders? Public resistance to global genomic data-sharing
PLoS BiologyDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Publication
Moving genomics into the clinic: Platforms for implementing clinical genomic data-sharing in ways that address ethical, legal and social implications
Journal of Law and Medicine -
Grant Abstract
Toward Consensus on Benefit Sharing in Genetics Research
Patient groups are becoming more active in promoting and facilitating pre-clinical and clinical research. While patient groups have long played a key role in participating in research, various groups…- Genetics
- health care policy
- health related legal
- health science research
- meeting /conference /symposium
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Publication
Establishing a blockchain-enabled Indigenous data sovereignty framework for genomic data
CellMackey and colleagues describe how Indigenous data sovereignty (IDS) principles could be operationalized with blockchain technology.