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171 - 180 of 7311 Topics
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Publication
Data stewardship in FTLD research: Investigator and research participant views
Alzheimer's & Dementia -
News
The Sulston Project: Making the Knowledge Commons for Interpreting Inherited Cancer Risk More Effective
The Sulston Project is a joint research effort at Arizona State University and Baylor College of Medicine named after John Sulston, the champion of open science who, with Bob Waterston, crafted the…- Genetic Data Sharing and Management
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Publication
Participants' recall and understanding of genomic research and large-scale data sharing
J Empir Res Hum Res Ethics -
News
A Bigger View: Ingrid Holm on Sharing Research Tools
CERA staff spoke with Ingrid A. Holm, MD, MPH, Professor of Pediatrics, Harvard Medical School, in April about two research instruments she deposited into the Research Tools Database on…- research tools
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Publication
A community effort to protect genomic data sharing, collaboration and outsourcing
Genomic MedicineThe Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe). Grant number(s): RM1HG009030 -
Publication
Beyond our borders? Public resistance to global genomic data sharing
PLoS BiolDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Publication
Beyond our borders? Public resistance to global genomic data-sharing
PLoS BiologyDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Publication
Moving genomics into the clinic: Platforms for implementing clinical genomic data-sharing in ways that address ethical, legal and social implications
Journal of Law and Medicine -
Grant Abstract
Toward Consensus on Benefit Sharing in Genetics Research
Patient groups are becoming more active in promoting and facilitating pre-clinical and clinical research. While patient groups have long played a key role in participating in research, various groups…- Genetics
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