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Grant Abstract
Engaging adolescents in decisions about return of genomic research results
The purpose of this study is to assess assenting and consenting adolescents choices about learning genomic research results. We will refine existing decision tools and processes to promote informed…- Adolescent
- Adult
- Age
- American
- anxiety states
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News
All of Us Research Program Releases Tribal Consultation Final Report
NIH to enhance tribal engagement efforts for precision medicine research: Tribal leaders inform All of Us Research Program’s next steps to include tribal communities PRESS RELEASE…- Tribal Sovereignty
- indigenous community
- Data Governance
- Alaska Native/American Indian Health Research
- Best practices for clinical and research ethics consultation
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Publication
Culturally appropriate consent processes for community-driven indigenous child health research: A scoping review
BMC Medical Ethics -
Grant Abstract
Community-Based Evaluation of APOL1 Genetic Testing in African Americans
Endstage renal disease (ESRD) or kidney failure affects over 500,000 persons in the United States and disproportionately affects racial and ethnic minority populations. Compared to whites, African…- advocacy organizations
- Affect
- African American
- Age
- Anxiety
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Publication
At a moment’s notice: Community advisory board perspectives on biobank communication to supplement broad consent
Public Health Genomics -
Publication
A decade of public engagement regarding human germline gene editing: A systematic scoping review
European Journal of Human Genetics -
Publication
Governing with public engagement: An anticipatory approach to human genome editing
Science and Public Policy -
Publication
Entwined processes: Rescripting consent and strengthening governance in genomics research with indigenous communities
Journal of Law, Medicine & Ethics -
Publication
Engagement with health research summaries via digital communication to All of Us participants
Journal of the American Medical Informatics Association