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ELSI Friday Forum: Biobanking in the Era of COVID
Biobanking is a crucial element of the medical and public health response to COVID-19 and future pandemics, as the storage and distribution of biospecimens and data become a driver of current and…- Biobanking
- Covid genomics
- Biobank Ethics
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Publication
Policy options to facilitate cancer genomic variant data sharing: Outcomes of a modified policy Delphi
Journal of Law and the Biosciences -
Publication
A systematic literature review of disclosure practices and reported outcomes for medically actionable genomic secondary findings
Genet MedClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): HG200387-07 -
Publication
States of uncertainty, risk-benefit assessment and early clinical research: A conceptual investigation
Science and Engineering Ethics -
Publication
Informed Consent and Protection of Personal Data in Genetic Research on COVID-19
Healthcare -
Publication
Non-invasive prenatal testing: Ethical issues explored
European Journal of Human Genetics -
Publication
Exploring rare disease patient attitudes and beliefs regarding genetic testing: Implications for person-centered care
Journal of Personalized Medicine -
Publication
Barriers to carrier testing for adult cystic fibrosis sibs: The importance of not knowing
American Journal of Medical Genetics -
Publication
How ready is the Italian healthcare system in the use of genomics? The B1MG Maturity Level Model
European Journal of Public Health