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Grant Abstract
Seeking Common Ground: A Forum for People with Disabilities and Genetics Professionals
The purpose of this project is to develop and host a workshop designed to bring people with disabilities, genetic disease health voluntary organizations and genetics professionals together to address… -
Grant Abstract
A Legal Research Agenda for the Human Genome Initiative
This project will support two workshops to establish a Legal Research Agenda--a detailed and concrete statement of the science and technology associated with the Human Genome Initiative and of the…- Ethics
- genetic mapping
- Genome
- health related legal
- human genetic material tag
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Grant Abstract
Impact of the HGI on Society: A Women's Studies Approach
The objectives of this group research project are to extend the analysis of ethical and social questions raised by the Human Genome Initiative by utilizing insights and methodology recently developed…- Ethics
- Genome
- health related legal
- human genetic material tag
- meeting /conference /symposium
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Publication
Forensic DNA phenotyping: Privacy breach, bias reification and the pitfalls of abstract assessments of rights
International Journal of Police Science & Management -
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Video
ELSIcon2022 Paper: How useful is genome sequencing to parents of pediatric cancer patients? Findings from the Texas KidsCanSeq Study
ELSIcon2022 • Paper • May 27, 2022 Janet Malek, Jill Robinson, Hadley Stevens Smith, Amanda Gutierrez, Sarah Classen, Sarah Scollon, D. Will Parsons, Sharon Plon, Amy McGuire The ongoing Texas…- Uptake of genetic testing
- Genetic testing and screening
- Paper
- Pre-Recorded
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Collection
Current Legal Challenges to Abortion: Implications for Prenatal Genetics
The ability to examine the health of the fetus has expanded dramatically in the last half century. Most of the time, the news is reassuring. However, prenatal screening and diagnosis detect genetic…- abortion
- prenatal genetics
- Down Syndrome
- Prenatal Diagnosis
- Prenatal screening
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Video
Platform Heals? Ethical Issues in Direct-to-consumer Telepharmacies
Ben Wills - The Hastings Center ELSIconversations - February 26, 2021 Healthcare is in the middle of a dramatic revolution. Hims, Hers, Roman, Nurx, LemonAid, and The Pill Club are start-ups…- direct to consumer marketing
- Direct to Consumer Genetic Testing
- telemedicine
- Healthcare