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Publication
Perspectives of researchers, science policy makers and research ethics committee members on the feedback of individual genetic research findings in African genomics research
BMC Medical Ethicsby Faith Musvipwa, Ambroise Wonkam, Benjamin Berkman, and Jantina de Vries -
Additional Resource
Consensus Study Report, The Future of the Public's Health in the 21st Century, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2003)
This National Academies Press publication documents the evidence-based findings, conclusions, and recommendations of a committee of experts on systems approaches to assuring the health of the U.S.…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Consensus Study Report, Environmental Effects of Transgenic Plants: The Scope and Adequacy of Regulation, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2002)
This National Academies Press publication documents the evidence-based findings, conclusions, and recommendations of a committee of experts on transgenic crops and public involvement in biotechnology…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Consensus Study Report, The Safety and Quality of Abortion Care in the United States, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2018)
This National Academies Press publication reviews the state of the science related to the provision of safe, high-quality abortion services in the United States.- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Workshop Proceedings, Issues in Returning Individual Results from Genome Research Using Population-Based Banked Specimens, with a Focus on the National Health and Nutrition Examination Survey (2013)
This National Academies of Sciences, Engineering, and Medicine report summarizes a February 2013 workshop, convened by the Committee on National Statistics in the Division of Behavioral and Social…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Publication
Knowledge creation practices at organizational boundaries: The role of ICT in sickle-cell care for tribal communities
Journal of Knowledge Management
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Publication
Voices of GA4GH members: Collaborating in technology and policy development
Cell Genomics -
Additional Resource
Consensus Study Report, Returning Individual Research Results to Participants: Guidance for a New Research Paradigm, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2018)
This report published by the National Academies Press explores the benefits, harms, and costs of returning individual research results as well as the ethical, social, and regulatory aspects of this…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Publication
Stakeholder engagement: A key component of integrating genomic information into electronic health records
Genet MedClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): U01HG006382, U01HG006375, UO1HG006389-01, U01HG04599, U01HG006379, U01HG006380, UL1RR029887, U01HG006388, U01…