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1721 - 1730 of 4459 Topics
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Publication
From beyond the grave: Use of medical information from the deceased to guide care of living relatives
Cancer Genomics -
Grant Abstract
Predicting Future Disease: Issues in the Development, Application, and Use of Tests for Genetic Disorders
The Institute of Medicine (IOM) through its Board on Health Sciences Policy established a panel of experts to evaluate issues in the development, application, and use of tests for genetic disorders.… -
Grant Abstract
Preparing for Emerging Applications of Noninvasive Prenatal Testing
Noninvasive prenatal genetic testing, which utilizes cell-free fetal DNA and advances in sequencing technology, is revolutionizing the practice of obstetrics. While currently used as a screen for a…- Aneuploidy
- base
- bench to bedside
- Blood specimen
- cell free fetal DNA
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Publication
Select ethical aspects of next-generation sequencing tests for newborn screening and diagnostic evaluation of critically ill newborns
International Journal of Neonatal Screening -
Publication
Referencing BRCA in hereditary cancer risk discussions: In search of an anchor in a sea of uncertainty
J Genet CounsClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): U01HG006487, 2P50HG004488, R00HG008819 -
Publication
Proprietary science, open science and the role of patent disclosure: The case of zinc-finger proteins
Nat BiotechnolDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Additional Resource
Consensus Study Report, Proposed Revisions to the Common Rule for the Protection of Human Subjects in the Behavioral and Social Sciences, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2014)
This National Academies Press publication documents the evidence-based findings, conclusions, and recommendations of a committee of experts on human subjects protections in social and behavioral…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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News
ELSI in Review • May 2022
About this listing ELSI in Review is a listing of recently published, systematic reviews of the literature on key ELSI topics curated by CERA staff. Our May 2022 set explores person-centered…