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Publication
Regulating the science and therapeutic application of human embryo research: Managing the tension between biomedical creativity and public concern
Hart Pub.Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
In the Media
China’s gene giant harvests data from millions of women
Reuters |Kirsty Needham and Clare Baldwin- Big Data Methods
- access to genetic information
- prenatal genetic testing
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Publication
Intentions to receive individual results from whole-genome sequencing among participants in the ClinSeq study
European Journal of Human Genetics -
Grant Abstract
Dissemination of a BRCA1 Predisposition Testing Program
This project will evaluate a BRCA1 predisposition testing program modeled closely on the Huntington Disease paradigm for members of previously identified families in which cancer susceptibility has…- breast neoplasms
- cancer prevention
- cancer risk
- family genetics
- Female
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Publication
Current status of prenatal management of fetal spina bifida in the world: Worldwide cooperative survey on the medico-ethical issue
Child's Nervous SystemDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Simultaneous breast cancer in non-identical Ashkenazi Jewish twins: Management dilemmas when genetic testing is negative
Clinical OncologyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Research Tool
Consent Preferences of UK Research Volunteers for Genetic and Clinical Studies Survey
This survey assesses views on aspects of the consent process, including willingness to share medical information and DNA for different research purposes, including controversial areas of research.