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Job Posting
Clinical Ethicist
The Clinical Ethicist contributes to initiatives that support the continuing evolution of integrated ethics programming at Children’s Health System of Texas (CHST). The incumbent is responsible for…- Clinical Ethics
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Publication
Preferences regarding return of genomic results to relatives of research participants, including after participant death: Empirical results from a cancer biobank
J Law Med EthicsClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): R01 CA154517, P50 CA102701, R01 CA97075, P20 HG007243, UL1 TR000135 -
Publication
Clinical obligations and public health programmes: Healthcare provider reasoning about managing the incidental results of newborn screening
Journal of Medical EthicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
Social Networking and Personal Genomics: Emerging Issues for Health Research
The convergence of rapid development of increasingly efficient high throughput genetic sequencing technologies and ubiquitous internet use by the public has laid the foundation for the emergence of…- Advocacy
- advocacy organizations
- Attitude
- base
- Bioethics
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Publication
People with cerebral palsy and their family’s preferences about genomics research
Public Health Genomics -
Publication
Human dignity: A guide to policy making in the biotechnology era?
Nature Reviews GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Additional Resource
White Paper, Dynamic Consent in Clinical Genetics: Implementation Barriers
This white paper prepared by Det Norske Veritas (DNV GL), a quality assurance and risk management company, identifies 6 barriers to the uptake of dynamic consent in clinical genetics.- white paper
- risk management
- Consent
- clinical genetics
- precision medicine
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Publication
The urgent need for health data justice in precision medicine
The American Journal of Bioethics -
Grant Abstract
Assessing Attitudes and Experiences of Early Adopters of Personalized Genomics
Completing the Human Genome and the Human HapMap Projects has enabled studies associating genetic variation with complex diseases such as various cancers, coronary artery disease, and diabetes. This…- Access to Information
- Accounting
- Address
- Area
- Attention
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Publication
Improving access to gene therapies: A holistic view of current challenges and future policy solutions in the United States
Journal of Comparative Effeectiveness Research