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Cost and availability of novel cell and gene therapies: Can we avoid a catastrophic second valley of death?

EMBO Reports

Michele De Luca, Giulio Cossu

2023

Publication

ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing

Genet Med

Green, Robert C., Berg, Jonathan S., Grody, Wayne W., Kalia, Sarah S., Korf, Bruce R., Martin, Christa L., McGuire, Amy L., Nussbaum,Robert L., O’Daniel, Julianne M., Ormond, Kelly E., Rehm, Heidi L., Watson, Michael S., Williams, Marc S., Biesecker, Leslie G.

2013

Publication

Providing recurrence risk counselling for parents after diagnosis of a serious genetic condition caused by an apparently de novo mutation in their child: A qualitative investigation of the PREGCARE strategy with UK clinical genetics practitioners

Journal of Medical Genetics

Alison C Kay, Jonathan Wells, Nina Hallowell, Anne Goriely

2023

Grant Abstract

Why Do Disability Activists Reject the Genome Project?

The ELSI program of the Human Genome Project has successfully calmed the fears of most constituents regarding the potential for a "eugenic" misuse of modern genetic technology. However, one…

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Publication

Knowledge creation practices at organizational boundaries: The role of ICT in sickle-cell care for tribal communities

Journal of Knowledge Management

Vinayak Ram Tripathi, Manish Popli, Swati Ghulyani, Shrey Desai, Ajai Gaur

2021

Publication

Voices of GA4GH members: Collaborating in technology and policy development

Cell Genomics

Staff, Editorial

2021

Publication

Perspectives on genetic and genomic technologies in an academic medical center: The Duke experience

J Pers Med

Katsanis, Sara Huston, Minear, Mollie A., Vorderstrasse, Allison, Yang, Nancy, Reeves, Jason W., Rakhra-Burris, Tejinder, Cook-Deegan, Robert, Ginsburg, Geoffrey S., Simmons, Leigh Ann

2015

Duke University Center for Public Genomics. Grant number(s): P50HG003391

Publication

Revisiting selected ethical aspects of current clinical in vitro fertilization (IVF) practice

Journal of Assisted Reproduction and Genetics

Anja von Schondorf-Gleicher, Lyka Mochizuki, Raoul Orvieto, Pasquale Patrizio, Arthur S. Caplan, Norbert Gleicher

2022

Publication

The evolution and status of genetics education in nursing in the United States 1983–1995

Image: The Journal of Nursing Scholarship

Gwen Anderson

1996

Publication

Genes and patent policy: Rethinking intellectual property rights

Nat Rev Genet

Lori B. Andrews

2002

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Cost and availability of novel cell and gene therapies: Can we avoid a catastrophic second valley of death?

ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing

Providing recurrence risk counselling for parents after diagnosis of a serious genetic condition caused by an apparently de novo mutation in their child: A qualitative investigation of the PREGCARE strategy with UK clinical genetics practitioners

Why Do Disability Activists Reject the Genome Project?

Knowledge creation practices at organizational boundaries: The role of ICT in sickle-cell care for tribal communities

Voices of GA4GH members: Collaborating in technology and policy development

Perspectives on genetic and genomic technologies in an academic medical center: The Duke experience

Revisiting selected ethical aspects of current clinical in vitro fertilization (IVF) practice

The evolution and status of genetics education in nursing in the United States 1983–1995

Genes and patent policy: Rethinking intellectual property rights

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