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Publication
Reflections on the cost of "low-cost" whole genome sequencing: Framing the health policy debate
PLoS BiolClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): P50 HG003391 -
Publication
Reflections on the cost of “low-cost” whole genome sequencing: Framing the health policy debate
PLoS BiologyDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Publication
A review of economic issues for gene-targeted therapies: Value, affordability, and access
American Journal of Medical Genetics, Part CGarrison and colleagues summarize three economics-related working group presentations at the 2021 National Center for Advancing Translational Sciences virtual conference and discuss important… -
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Video
Genomics Research and Childhood Obesity through the Lenses of Equity: Reassessing Responsibilities and Costs between Families and Society
ELSIcon2024 • Paper • June 12, 2024 Authors: Speaker: Ilaria Galasso, PhD - Technical University of Munich (Germany) This paper explores the ELSI of genomics research around…- ELSIcon2024
- 6th ELSI Congress
- equity and justice in genetics
- Perinatal and public health genetic screening
- Public Health
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Publication
Somatic gene therapy research in pediatric populations: Ethical issues and guidance for operationalizing early phase trials
Pharmaceutical Medicine -
Publication
Guidance for human somatic cell therapy and gene therapy
Human Gene TherapyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Gene pill patents a surprise for gene therapy
Nature BiotechnologyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Canavan gene therapy protocol
ScienceDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…